Methodology and data collection

Project Methodology

The Epilepsy12 national audit comprises three components: service descriptor, clinical audit and patient reported experience measure.

Epilepsy12 Short Methodology Guide (MS Doc, 4.2MB, 8 pages)

Epilepsy12 Full Methodology Guide July 2011 (PDF, 1MB, 28 pages)

Clinical audit

The clinical audit component compares delivered care against recommended care using 12 key indicators derived from the NICE and SIGN guidelines.

Epilepsy12 Performance Indicators (PDF, 563KB, 1 page)

Epilepsy12 Inclusion & Exclusion Criteria (PDF, 549KB, 1 page)

Epilepsy12 Clinical Audit Proforma July 2011 (PDF, 195KB, 12 pages)

Early Adopters: 1 February to 31 July 2011
Regular Units: 1 May to 31 October 2011

Service description

The service descriptor component aims to obtain contextual information about the service.

Epilepsy12 Service Questionnaire 28 July 2011 (PDF, 96KB, 5 pages)

Early Adopters: 1 February 2011 - 31 March 2011
Regular Units: 1 May 2011 to 30 June 2011

Patient experience questionnaire

The patient experience questionnaire aims to capture the experiences of both the young person and parent/carer.

Epilepsy12 Patient Questionnaire Feb 2011 (PDF, 77KB, 6 pages)

Early Adopters: 1 February to 31 July 2011
Regular Units: 1 May 2011 to 31 October 2011

Data collection dates

The national epilepsy audit will be carried out in two phases. The census date for early adopters is 1 February 2011, while the 1 May 2011 is the census date for regular units.

Epilepsy12 Rollout Timelines (PDF, 90KB, 1 page)

Epilepsy12 Dates & Deadlines (PDF, 70KB, 1 page)

Web based data collection tool - health professionals

For those registered with permissions, please use the Epilepsy 12 web tool. You will need a username and password. For guidance, please see the web tool user guide (PDF, 1.2MB, 20 pages).

Contact the Epilepsy12 team if you have any queries.

Associated Publications, Resources and Links

  • Epilepsy12 - background and purpose
    Epilepsies are the commonest disabling chronic neurological disorders of childhood with a prevalence of approximately ...
  • Epilepsy12 FAQs
    Project Background What are the aims of the audit? Which services in the UK are eligible to ...
  • Clinical Audit and Quality Improvement
    Clinical audit projects As part of the   College's strategy for clinical audit , we facilitate high ...
  • Mapping services
    We are currently mapping the UK in order to provide a pragmatic network of tertiary and secondary level services. We ...
  • Stakeholder organisations
    The following organisations have registered as project stakeholders or are partners in the National Epilepsy Audit: ...
  • Newsletter and annual report
    The Royal College of Paediatrics and Child Health (RCPCH) produces newsletters and annual reports for its members. ...