NPDA Patient Reported Experience Measure (PREM)

The Royal College of Paediatrics and Child Health are pleased to introduce the National Paediatric Diabetes Audit Patients Reported Experience Measure (NPDA PREM) for 2012.  The purpose of this measure will be to gauge how patients and their families feel about their experience of the care they receive at paediatric diabetes clinics.  

This short questionnaire constitutes part of the College’s NPDA activity, which is funded by the Healthcare Quality Improvement Partnership (HQIP), and will run alongside the main audit from 3 September to 31 December 2012. 

Copies of the English language PREM (PDF, 257KB), along with associated materials, were recently distributed to all centres registered as NPDA participants. The questionnaire is also available in the following languages (please click on a language to download a translated version of the PREM):

• Hindi (PDF, 1.8MB)
• Polish (PDF, 267KB)
• Somali (PDF, 268KB)
• Urdu (PDF, 287KB)
• Welsh (PDF, 256KB) 

The full recommended PREM delivery procedure is as follows:

• One copy of the PREM should be completed once by each patient during the period 3 September 2012 – 28 February 2013. We kindly ask that you keep an ongoing record of which patients have returned a completed PREM during this period, so as to avoid multiple responses by the same patient.
• Clinic staff should complete the relevant section at the beginning of each questionnaire, which asks for the patient’s NHS number and date of birth. This should be done before giving the questionnaire to the patient.
• The child may complete the questionnaire alone or with the help of their parent(s)/carer(s).
• The patient should be asked to complete the questionnaire immediately before or after their appointment and return it before leaving the clinic that same day.
• Patients should return their completed PREMs by folding the sheet in half and placing it in the sealed box provided by the RCPCH. This box should be made as easily accessible to the patients as possible.
• The box should be kept sealed and stored in a locked room between clinic dates
• No attempt should be made to return completed questionnaires to the RCPCH until further notice. The RCPCH will be in touch with units in due course to outline the procedure for the secure return of completed PREMs at the end of the collection period.  Please note that this collection period has now been extended to 28 February 2013.

The RCPCH would like to thank centres in advance for their participation in this exercise, which has the ultimate aim of improving outcomes for children and young people with diabetes.

Further information

Contact the NPDA team, RCPCH, 5-11 Theobalds Road, London, WC1X 8SH, Tel: 020 7092 6157.  Email: npda@rcpch.ac.uk