NPDA Patient Reported Experience Measure (PREM)
The Royal College of Paediatrics and Child Health are hosting the National Paediatric Diabetes Audit - Patients Reported Experience Measure (PREM) for the second year. The purpose of this measure is to gauge how patients and their families feel about their experience of the care they receive at paediatric diabetes clinics.
Two versions of the PREM will be in use this year – one aimed at the patient (child) and another aimed at the patient's parents or carers. These can be completed online or by the hard paper copy.
PREM 2013/14 schedule
This year’s PREM will run for a total of five months from:
- 2 September 2013 - 31 December 2013 for paper collection
- 2 September 2013 - 31 January 2014 for on-line submissions
Only one copy of the PREM should be completed by the patient, either online or on paper and up to two of the patient's parents/carers should also be given the opportunity to complete a 'Parent/Carer' PREM form.
Paper collection procedure 2013/14
- If the patient has chosen to complete a paper PREM, clinic staff are kindly asked to complete the relevant section at the beginning of each questionnaire, which asks for the patient’s NHS number and date of birth. This should be done before giving the questionnaire to the patient.
- Patients should be directed to return any completed paper PREMs by folding the sheet in half and placing in a sealed envelope and returning this to a member of staff or by placing it in a sealed collection box. All returned PREM forms should be stored securely in a lockable compartment until they are returned to the RCPCH.
The RCPCH encourages units to decide on a suitable local protocol for collecting and storing paper PREM responses in a way that ensures confidentiality and data security.
Please note: All PREM paper forms must be returned to RCPCH offices by 5pm Friday 17 January 2014.
We ask that all units post this year’s forms back to us by using Royal Mail Special Delivery ‘Signed for’ post and we will reimburse your costs. We believe this to be the most secure and easiest way to return paper forms.
- Please use a strong plastic envelope or two paper envelopes double wrapped to reinforce and ensure the package is not damaged in transit.
Clearly mark your envelope with your unit’s PZ code and address envelope to:
NPDA – PREM
Royal College of Paediatrics and Child Health
5-11 Theobalds Road
- Once you have posted the forms please email NPDA@rcpch.ac.uk with your PZ code and the tracking number of the Special Delivery Label.
- Once the envelope arrives at the RCPCH, we will email you to confirm receipt of your envelope and forward an expense claim form to reimburse your postage.
- Return the expense claim form to us by post with your original receipts to receive reimbursement approximately two weeks from receipt of the claim form.
- Postage expenses must be claimed no later than 31 March 2014.
Please note: PREM Forms returned after Friday 17 January 2014 cannot be included in the data analysis for this year’s PREM.
Online collection procedure 2013/14
An online version of the PREM has been developed for patients, as well as their parents or carers. The online PREM is expected to offer significant benefits over the paper-based version used last year - both to clinic staff and to your service users.
While we would very much encourage the uptake of the online version, we appreciate that this may not be a viable option for all units and so PDF versions of both PREMs, coded with your centre's unique PZ number, will be made available by request.
The online PREM will be hosted on the secure RCPCH Electronic Web Platform and requires an internet connection to access it. We would encourage you to review your clinic’s requirements with your I.T. department at the earliest possible opportunity in order to assess your centre’s capacity to deliver the PREM online.
Units have from 2 September until 31 January 2014, to use the online PREM to collect responses from their patients and/or their parents or guardians.
- One copy of the PREM should be completed, by each patient during the period. Up to two of the patient's parents/carers should also be given the opportunity to complete a 'Parent/Carer' PREM.
- Clinic staff should provide the patient/parent/carer with the patient's NHS Number before they begin completing the online PREM.
The RCPCH would like to thank centres in advance for their participation in this exercise, which has the ultimate aim of improving the care experience as well as clinical outcomes for children and young people with diabetes.
Individualised NPDA PREM reporting tool for 2012/13
Results from the 2012/13 NPDA Patient Reported Experience Measure (PREM) is available to access using the(Excel, 1.83MB). This easy to use application will allow you to view PREM data for every unit that participated in the 2012/13 exercise and see how they compare to other paediatric diabetes units in the same region, as well as nationally.
Note: Excel and Word versions 2007 or above required are required to run this application. Full details on how to run and use this application can be found in this
For further information about the NPDA PREM
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