Epilepsy Passport

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The Epilepsy Passport contains essential up-to-date information about a child or young person’s epilepsy, including their emergency care plan, medication history and key professional contacts.

This has been developed by the Royal College of Paediatrics and Child Health (RCPCH) with input from key epilepsy professionals, parents, children and young people and funded by the Healthcare Quality Improvement Partnership (HQIP). The aim is to help children and young people with epilepsy and their families communicate with healthcare and other professionals and to help healthcare professionals communicate with each other.

Download the Epilepsy Passport (PDF, 700KB)

What is the Epilepsy Passport?

The Epilepsy Passport is a paper record containing relevant and up-to-date clinical information about a child or young person’s epilepsy. It has been developed by the Royal College of Paediatrics and Child Health (RCPCH) following one of the key recommendations of the RCPCH Child Health Review into Epilepsy (RCPCH, 2013).

It is designed to be used primarily when families access emergency healthcare, enabling clear communication and avoiding unnecessary delays. It may also be used in other circumstances such as sharing information with schools, residential or respite care services.

How is the Epilepsy Passport created?

The Epilepsy Passport is available to download above. It is completed by paediatricians/paediatric neurologists and specialist epilepsy nurses at epilepsy clinic appointments. A copy will be saved locally for future updates and printed off for the child or young person with epilepsy, their parent or carer to carry at all times in a small plastic wallet and to present to healthcare professionals as and when needed.

No information about the child or young person’s epilepsy will be stored on the website, but a completed form should be saved locally, as part of the patient’s clinical record and for future updates.

Who will carry the Epilepsy Passport?

The Epilepsy Passport should be carried by the child or young person with epilepsy, their parent or carer at all times. It has been designed to be folded to wallet size which makes it easy to carry in a small plastic wallet.

You can request a wallet for your Epilepsy Passport from your Epilepsy Clinic.

When should the Epilepsy Passport be updated?

The Epilepsy Passport should be updated when any changes are made to the epilepsy management, eg a change in medication or in the emergency care plan. Any updates should be made by the paediatricians/paediatric neurologists and specialist epilepsy nurses. A copy of the updated Passport should be saved locally for future updates and printed off for the child or young person with epilepsy, their parent or carer to carry at all times.

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