Epilepsy12 Round 2 - National Report launch event

The RCPCH hosted an evening event in London on Wednesday 26 November to launch the National Report of Round 2 of Epilepsy12. The event was chaired by Dr Fiona Campbell, RCPCH Officer for Clinical Standards, and brought together key people in the epilepsies and child health field, plus views from patients and their families.

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Image: Clinical Lead Colin Dunkley presenting at the launch.

Alex

At the launch Mr Alex Mooney, a 17 year old patient with epilepsy, shared his experiences. Alex gave a great insight into some of the hidden issues that a young person has to deal with, the ways that services have helped him and in particular the input that he has received from his new Epilepsy Specialist Nurse, Neil.  A film of Alex’s presentation at the launch can be seen below.

Eleanor

Attendees also saw a short film featuring Eleanor and her mum Claire.  Eleanor aged 7, and her mum Claire, talked about her epilepsy and gave an interesting perspective on the care received and the benefits of now having an Epilepsy Specialist Nurse to support them. Their film can be seen below.

Key findings

Dr Colin Dunkley, Consultant Paediatrician and Epilepsy12 Clinical Lead presented the key findings and recommendations from the report. His presentation can be seen here.

Contact

Email: epilepsy12@rcpch.ac.uk