NPDA - transparency and open data

Data from the National Paediatrics Diabetes Audit (NPDA) that describes the extent to which key care processes for infants, children and young people with diabetes are being met in England and Wales. The most recent data is for the the 2014-15 audit period, and was released in May 2016.

More about the NPDA

About the data

The data describe the extent to which the seven key care processes for infants, children and young people under the age of 25 years with diabetes - as recommended by National Institute for Health and Care Excellence (NICE) - are being met in paediatric diabetes units in England and Wales.

These care processes are recorded to monitor diabetes management and to detect long term complications at the earliest treatable stage. They are:

  • Glycated Haemoglobin A1c (HbA1c) (blood test for diabetes control)
  • Body Mass Index (BMI) (measure of cardiovascular risk)
  • Blood pressure (measure of cardiovascular risk)
  • Urinary albumin (urine test for kidney function)
  • Thyroid 
  • Eye screening (photographic test for eye risk)
  • Foot examination (foot examination for ulcer risk)

Fair Processing

The NPDA has section 251 approval to collect patient identifiable data without explicit patient consent. This data is processed and reported by the NPDA team at the Royal College of Paediatrics and Child Health, with HQIP as the data controller. HQIP may approve the sharing of pseudonymised NPDA data for the purpose of academic research if stringent data protection policies and arrangements can be demonstrated by requestees and the aims of the research are approved. NPDA data will also be linked to Hospital Episodes and Statistics data produced by the HSCIC and the Patient Episodes for Wales supplied by the NWIS in order for the audit to produce reports on diabetes-related hospitalisation of children and young people. If patients or their parents do not wish to have their data submitted to the audit by their clinic, they should instruct their diabetes team not to include this in their annual submission to the NPDA team.

Information for young people, parents and carers

Written consent is not required for submission of patient data to the audit. However, patients are to be made aware that their data is being utilised and be given the option to opt out of having their data submitted.

Data source and interpretation

All data is reported at the level of individual paediatric diabetes units. It does not include any patient identifable information. This data requires careful interpretation. The information should not be looked at in isolation when assessing standards of care. We will publish data for each year of the NPDA. The data is also be available on data.gov.uk.
 

2015-16 data

This data is from the 173 paediatric diabetes units in England and Wales which successfully submitted data to NPDA within the 12-month audit period, 1 April 2015 to 31 March 2016. It includes the patient's most recent visit within the audit period.

2014-15 data

This data is from the 176 paediatric diabetes units in England and Wales which successfully submitted data to NPDA within the 12-month audit period, 1 April 2014 to 31 March 2015. It includes the patient's most recent visit within the audit period.

2013-14 data

This data is from the 177 paediatric diabetes units in England and Wales which successfully submitted data to NPDA within the 12-month audit period, 1 April 2013 to 31 March 2014. It includes the patient's most recent visit within the audit period. The data was first published as part of the NPDA Annual Report for 2013-2014: Part 1 - Care Processes and Outcomes (PDF 3MB) released March 2015 and updated on 2 October 2015.

2012-13 data

This data is from the 177 paediatric diabetes units in England and Wales which successfully submitted data to NPDA within the 12-month audit period, 1 April 2012 to 31 March 2013. It includes the patient's most recent visit within the audit period. The data was first published in the NPDA Annual Report for 2012 - 2013: Part 1 - Care Processes and Outcomes(PDF, 2.52MB) - released October 2014.

2011-2012 data

 ThTThddddfd    NPDA 2011-12 report data is from the paediatric diabetes units in England which successfully submitted data to NPDA within the 12-month audit period, 1 April 2011 to 31 March 2012. It includes the patient's most recent visit within the audit period. 

Please note that while the audit covered both England and Wales, this data relates to units in England only.

Contact

For more information, please contact the NPDA Team.

  • Post: RCPCH, 5-11 Theobalds Road, London, WC1X 8SH
  • Tel: 020 7092 6157
  • Email: npda@rcpch.ac.uk