National Paediatric Diabetes Audit news

Keep up to date with the latest news from the National Paediatric Diabetes Audit (NPDA) Programme.

 

NPDA release the 2014-15 Parent/Carer report

NPDA parent and carer report - front cover         front cover web_0.jpg

The NPDA team is delighted to announce the release of the 2014-15 NPDA annual parent/carer report (PDF, 1.87MB) and Welsh version (PDF, 1.87MB) of the lay report.  

The report summarises the main findings of the NPDA annual report. It aims to raise awareness for parents and carers of the key checks their child/children should be receiving as a part of their diabetes care, and the importance of achieving good diabetes control in order to reduce the risk of complications. 

We will soon distribute ‘Do not remove’ print copies of this lay report to clinics. They can display these in waiting areas for families attending their diabetes appointments. We will send copies to Regional Network Managers to help them raise awareness of the report amongst parent groups. 

NPDA 2014-15 Annual National Paediatric Diabetes Report

2014 - 15 report cover

This 2014-15 national report (PDF), funded by the Healthcare Quality Improvement Partnership (HQIP), covers care processes received as well as the outcomes for children and young people with diabetes who attended Paediatric Diabetes Units between 1 April 2014 - 31 March 2015.

Reports for each participating unit are also available

Dr Justin Warner, clinical lead for the NPDA and member of the Royal College of Paediatrics and Child Heath, suggests:

“It is extremely heartening to see continued improvement in outcomes for children and young people with diabetes. There have been many changes in the landscape for paediatric diabetes over the last five years including the establishment of managed networks and quality assurance measurements.

Furthermore, the publication of service delivery plans in England and Wales and the ‘best practice tariff’ in England has enabled Trusts and Health Boards delivering care to improve the quality of service they provide. The investment is paying off with continued quality improvement.”

The report also highlights deficiencies in care and variability in outcomes, showing that there is much still to be done to ensure that all children and young people are supported to manage their diabetes and avoid future complications.  Recommendations for staff in paediatric diabetes units, commissioners and parents are made to help drive the necessary improvements in care identified.

A lay summary of the report's findings will be published in July for patients and parents/carers (see above).

The report has been widely covered across the media this morning, including being featured on BBC Breakfast, with Helen Thornton, Specialist Diabetes Nurse and NPDA Board Member being interviewed live in the studio. The NPDA Clinical Lead, RCPCH’s Dr Justin Warner was interviewed for the Today Show on BBC Radio 4 and has given interviews across several BBC radio stations. Kate Fazakerley, NPDA parent rep and her daughter are to appear on Channel 5 news this evening. So far over 400 news outlets have covered the story.

2014-2015 Annual report media coverage

Coverage has included: BBC News online, Daily Mail, ITV Wales, the South Wales Argus, and a range of regional newspapers and trade publications including theNursing Times. See the full listing of report media coverage (PDF, 193KB).

The report highlights that as per the findings of the previous audit, there remains significant variation across regions and between units and that three quarters of young people aged 12 years of age and above did not receive all seven recommended care processes on an annual basis as previously recommended by NICE at time of audit. The new NICE guidance will be reflected in reporting of the 2015/16 data.

Other findings included:

  • The number of children achieving excellent diabetes control increased from 15.8% (2012/13) to 23.5% (2014/15)
  • 98.7% of children and young people had their HbA1c measured in the audit year
  • Nearly two thirds (64.9%) of young people with diabetes over the age of 12 had their eyes screened
  • Just over half (52.4%) were checked for urinary albumin -  a test to determine whether someone’s kidneys are damaged
  • 11.6% of young people are at increased risk of kidney disease and 13.2% at increased risk of blindness
  • Children with Type 1 diabetes more likely to be overweight or obese compared to the general population.

Information for young people, parents and carers

Written consent is not required for submission of patient data to the audit. However, patients are to be made aware that their data is being utilised and be given the option to opt out of having their data submitted.

Contact

Email - npda@rcpch.ac.uk