Stakeholder organisations
The following organisations have registered as project stakeholders or are partners in the National Epilepsy Audit:
- Association of British Neurologists (ABN)
- Association of Neurophysiological Scientists (ANS)
- British Association for Community Child Health (BACCH)
- British Association of Childhood Disability (BACD)
- British Paediatric Neurology Association (BPNA)
- British Psychological Society
- British Society for Clinical Neurophysiology (BSCN)
- British Society of Neuroradiologists (BSNR)
- Centre for Maternal and Child Enquiries (CMACE)
- College of Emergency Medicine
- Contact a Family
- Daisy Garland
- David Lewis Centre
- Epilepsy Action
- Epilepsy Bereaved
- Epilepsy Connections
- Epilepsy Here
- Epilepsy Nurses Association
- Epilepsy Outlook
- Epilepsy Research UK
- Epilepsy Scotland
- Epilepsy Wales
- Gwent Epilepsy Group
- Health Quality Improvement Partnership (HQIP)
- Joint Epilepsy Council
- Joint Neurological Council (JNC)
- Mathews Friends - Dietary Treatments of Epilepsy
- National Clinical Guideline Centre Epilepsy Guideline Development Group
- National Institute for Health and Clinical Excellence (NICE)
- National Society for Epilepsy (NSE)
- National Centre for Young People with Epilepsy (NCYPE)
- Neonatal and Paediatric Pharmacists Group (NPPG)
- Neurological Alliance
- Quality Improvement Scotland (QIS)
- Roald Dahl Foundation
- Royal College of General Practitioners
- Royal College of Nursing (RCN)
- Royal College of Psychiatrists - Epilepsy Group
- Royal College of Radiologists
- Royal Pharmaceutical Society of Great Britain (RPSGB)
- Scottish Epilepsy Centre
- Scottish Epilepsy Initiative
- Scottish Intercollegiate Guidelines Network (SIGN)
- Society of British Neurological Surgeons
- Syncope Trust And Reflex anoxic Seizures (STARS)
The project is also supported by Dr Dougal Hargreaves, Clinical Advisor to Dr Sheila Shribman, National Clinical Director for Children & Young People and Dr Tony Marson (Adult Epilepsy Audit).
Stakeholders will be able to:
- Raise queries or issues via the Project Manager which will be addressed by the project board.
- Receive project newsletters and annual reports.
- Provide comment on project documents as directed by the project board.
To register as a stakeholder organisation please email the Epilepsy12 project team.
Associated Publications, Resources and Links
- Mapping services
We are currently mapping the UK in order to provide a pragmatic network of tertiary and secondary level services. We ... - Methodology and data collection
Project Methodology The Epilepsy12 national audit comprises three components: service descriptor, clinical audit ... - Epilepsy12 National Audit
This national three-year audit, funded by the Health Quality Improvement Partnership (HQIP), aims to help improve ... - Epilepsy12 FAQs
Project Background What are the aims of the audit? Which services in the UK are eligible to ... - Epilepsy12 - background and purpose
Epilepsies are the commonest disabling chronic neurological disorders of childhood with a prevalence of approximately ...