CNS Inflammatory Demyelination Disease

Lead investigator 

Dr Michael Absoud
Paediatric Neurology Department
Birmingham Children's Hospital 
Birmingham
B4 6NH

Email: Dr Michael Absoud

Overview

• Inflammatory demyelinating diseases are a rare group of illnesses which affect the central nervous system (which is made up of the brain and spinal cord).
• Many children recover well from these conditions, however, some have longer-term problems and may even have another bout of illness.
• We currently do not know how often these conditions occur in children in the UK and Ireland, and we can’t always say what the future holds for a child who is affected. Along with other studies by our paediatric demyelination research group , our population study attempts to fill some of these gaps in our knowledge.

This study aims to:

1. Find out how many children are affected by a new demyelinating event (incidence) in the UK and Ireland.
2. Find out what happens to these children in the longer-term, for example how many children have a disability or a second episode.
3. Describe treatments currently being used in the UK and Ireland.

Duration: September 2009 – September 2010     

Funding: Multiple Sclerosis Society and Action Medical Research Charities

Ethical approval: The study has Black Country Research Ethics Committee (09/H1202/92) and NIGB Ethics and Confidentiality Committee approvals (ECC/BPSU 4-03 [FT1] /2009).

Further Information                  

• Protocol card (PDF, 85KB, 2 pages)
• Questionnaire (PDF, 182KB, 3 pages)
• Follow-Up Questionnaire (PDF, 129KB, 3 pages)
• Public Information Leaflet (PDF, 48KB, 2 pages)

Support Group MS Society