British Paediatric Surveillance Unit


The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.

The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the UCL Great Ormond Street Institute of Child Health (ICH) with support from GOSH Children's Charity to facilitate research into rare childhood disorders.

Quick links

What is the BPSU?

Areas of impact

BPSU studies



Patients and the public

International Network of Paediatric Surveillance Units Conference 2018

30th anniversary report

Rare diseases in paediatrics conference 2017 - From bench to bedside: New treatments for children with rare disease - Monday 27 February 2017

Information for investigators

Sir Peter Tizard research bursary 2016-17

International activities

Sign up for the orange reporting cards


Richard Lynn, Scientific Coordinator

Reporting cards (orange cards)



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