Epilepsy12 national audit in paediatric care - logo

Epilepsy12 is a national clinical audit, established in 2009, with the aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies.

For enquiries

 

Background

The national reports from Rounds 1 and 2 of Epilepsy12 are available to view alongside summary versions for parents, carers, children and young people.

Go to all reports
 

Round 3 Methodology

In round 3, Epilepsy12 has an expanded scope and aims to:

  • Continue to measure and improve care and outcomes for UK children and young people with epilepsies
  • Include all children and young people with a new onset of epilepsy
  • Enable continuous patient ascertainment
  • Use a pragmatic and concise dataset
  • Incorporate NICE Quality Standards, Mental Health, Educational and Transition metrics
  • Obtain approval to include patient identifiers to allow local real-time individual and service dashboard elements within the audit reporting platform.

The RCPCH is working closely with key stakeholder organisations to ensure that all of the above elements are developed in a manner which best serves the whole paediatric epilepsy community.

View methodology used in round 2

OPEN UK

Organisation of Paediatric Epilepsy Networks in the United Kingdom (OPEN UK) was established in 2015 with support from the National Clinical Director for Children, Young People and Transition to Adulthood. OPEN UK comprises representation from all regional epilepsy networks and aims to unite children’s regional and national epilepsy networks to improve integrated care for children and young people with epilepsies by:

  • Encouraging collaboration and sharing of regional and national ideas, pilots, and resources
  • Being a national resource and professional UK paediatric body to which other strategic organisations may come for information, support, data and clinical input
  • Facilitating links to strategic regional and national funding bodies.

Epilepsy12 will benefit from OPEN UK as a framework for engaging providers, disseminating results and promoting quality improvement within wider network activities. Epilepsy12 will in turn provide support to OPEN UK for the administration of its regional audit meetings and quality improvement initiatives.

View further details of the OPEN UK regional networks and contacts

Quality improvement tools

During rounds 1 and 2 tools and resources relating to the Epilepsy12 performance indicators were developed. These will be updated throughout round 3 but can still be accessed using search criteria for service type, geographical location and area of interest.

Go to the QI toolkit section

Key partner organisations

Epilepsy12 partners - Epilepsy Action, RCN, BSCN, Epilepsy Scotland, Healthcare Improvement Scotland, HQIP, Young Epilepsy, BPNA, BACD

We are working closely with key stakeholder organisations to ensure that the audit is developed in a manner which best serves the whole paediatrics epilepsy community.

News

Round 3 of Epilepsy12 is underway.

We are delighted to announce that round 3 of “Epilepsy12”, the UK collaborative clinical audit of health care for children and young people with suspected epileptic seizures, began on 1 April 2017 as part of the National Clinical Audit and Patient Outcomes Programme.

*Please note that data entry for the third round of Epilepsy12 won’t actually start until the spring of 2018.

The Epilepsy12 project team will be undertaking the formal registration of units to participate in the third round during September and October initially using our contacts from the last round of the audit.

Further details of the data entry timeframe, data entry governance and full audit methodology will be communicated to all registered unit contacts before the end of 2017.

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Dr Colin Dunkley reappointed clinical lead

Colin Dunkley was reappointed as the clinical lead for Epilepsy12, having led the audit through rounds 1 and 2.