Epilepsy12 national audit in paediatric care - logo

Round 3 of Epilepsy12 is underway.

The Royal College of Paediatrics and Child Health was delighted to have been re-commissioned to deliver round 3 of “Epilepsy12”, the UK collaborative clinical audit of health care for children and young people with suspected epileptic seizures.  Round 3 began on 1 April 2017 as part of the National Clinical Audit and Patient Outcomes Programme.

Epilepsy 12 was established in 2009 and has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies.

As per rounds 1 and 2 of the audit Dr Colin Dunkley, Consultant Paediatrician, is the clinical lead for Epilepsy12 and is supported by a dedicated project team within the RCPCH.

For enquiries



The national reports from Rounds 1 and 2 of Epilepsy12 are available to view alongside summary versions for parents, carers, children and young people.

Go to all reports

Round 3 Methodology

In round 3, Epilepsy12 has an expanded scope and aims to:

  • Continue to measure and improve care and outcomes for UK children and young people with epilepsies
  • Include all children and young people with a new onset of epilepsy
  • Enable continuous patient ascertainment
  • Use a pragmatic and concise dataset
  • Incorporate NICE Quality Standards, Mental Health, Educational and Transition metrics
  • Obtain approval to include patient identifiers to allow local real-time individual and service dashboard elements within the audit reporting platform.

The Epilepsy12 project team within the RCPCH has worked closely with key stakeholder organisations to ensure that all of the above elements have been developed in a manner which best serves the whole paediatric epilepsy community.

View further details of the full methodology for round 3


OPEN UK was established in 2015 with support from the National Clinical Director for Children, Young People and Transition to Adulthood.  OPEN UK comprises representation from all regional epilepsy networks and aims to unite children’s regional and national epilepsy networks to improve integrated care for children and young people with epilepsies by:

  • Encouraging collaboration and sharing of regional and national ideas, pilots, and resources
  • Being a national resource and professional UK paediatric body to which other strategic organisations may come for information, support, data and clinical input
  • Facilitating links to strategic regional and national funding bodies.

Epilepsy12 will benefit from OPEN UK as a framework for engaging providers, disseminating results and promoting quality improvement within wider network activities. Epilepsy12 will in turn provide support to OPEN UK for the administration of its regional audit meetings and quality improvement initiatives.

View further details of the OPEN UK regional networks and contacts

Quality improvement tools

During rounds 1 and 2 tools and resources relating to the Epilepsy12 performance indicators were developed.  These will be updated throughout round 3 but can still be accessed using search criteria for service type, geographical location and area of interest.

Go to the QI toolkit section

Key partner organisations

Epilepsy12 partners - Epilepsy Action, RCN, BSCN, Epilepsy Scotland, Healthcare Improvement Scotland, HQIP, Young Epilepsy, BPNA, BACD

We are working closely with key stakeholder organisations to ensure that the audit is developed in a manner which best serves the whole paediatrics epilepsy community.


Epilepsy12 is included in the NHS England Quality Accounts List 2018/19.

Epilepsy12 has been confirmed as one of the national audits within the National Clinical Audit and Patient Outcomes Programme (NCAPOP) which NHS England advises Trusts to prioritise for participation and inclusion in the NHS England Quality Accounts list for 2018/19.

Registration for participating in round 3 is going really well – but still a bit of work to do

The majority of paediatric services in Health Boards and Trusts across England, Scotland and Wales have registered to participate in round 3.  Registration of Epilepsy12 EEG Service leads has also picked up considerably of late and the project team are grateful for the efforts that have been made to spread the message about the audit to amongst their colleagues.  You can view current registration progress on the map embedded within the OPEN UK homepage.

Updated Round 3 methodology documentation available to view

An update of the full methodology for round 3 is available to view including details of the data entry and reporting timelines.

Joint Epilepsy12/OPEN UK annual conference to take place on 22 June 2018

OPEN UK and Epilepsy12 are delighted to announce that they have agreed to jointly deliver a free-to-attend all day national conference on 22 June in central London.  The event is open to all multidisciplinary members of paediatric epilepsy services across the OPEN UK networks, as well as representatives of patient and parent/carer organisations. The event will focus primarily on epilepsy12 activities and OPEN UK-led quality improvement initiatives, rather than education and research. 

Please save the date and consider whether your local paediatric service might wish to take up the opportunity to showcase any successful QI initiatives that you have undertaken as part of the event programme.  Abstracts of up to 500 words for showcase poster/presentation opportunities should be sent to the Epilepsy12 project team at epilepsy12@rcpch.ac.uk by Wednesday 28 February.

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Dr Colin Dunkley reappointed clinical lead

Colin Dunkley was reappointed as the clinical lead for Epilepsy12, having led the audit through rounds 1 and 2.