OPEN UK

open uk.png

Aims

  • To unite children’s regional and national epilepsy networks to improve integrated care for children and young people with epilepsies by:
  • Encouraging collaboration and sharing of regional and national ideas, pilots, and resources
  • Being a national resource and professional UK paediatric body to which other strategic organisations may come for information, support, data and clinical input facilitating links to strategic regional and national funding bodies.
Current Terms of Reference:  OPEN UK Terms of Reference (PDF, 312 KB)
 
Current Secretary:  Dr Richard Brown

The Epilepsy12 project team is currently undertaking the formal registration of Health Boards/Trusts and EEG departments to participate in the third round of the audit. OPEN UK regional leads are helping the Epilepsy12 project team with this process and you can view the progress with registration across England, Scotland and Wales on the OPEN UK map below.  

Current Regional Membership:

Network

Network Name

Link(s) Name

PENNEC

Paediatric Epilepsy Network for the North East and Cumbria

Anita Devlin

Ramesh Kumar 

YPEN

Yorkshire Paediatric Neurology Network

Rajeeva Singh/Kerry Jeavons

SWTPEG

South West Thames Paediatric Epilepsy Group

Tim Kerr

ORENG

Oxford region epilepsy interest group

Geetha Anand

WPNN

Wessex Paediatric Neurosciences Network

Andrea Whitney

NTPEN

North Thames Paediatric Epilepsy Network

Christina Petropoulos

EPEN

Eastern Paediatric Epilepsy Network

Richard Brown

CEWT

Children's Epilepsy Workstream in Trent

Colin Dunkley

BRPNF

Birmingham Regional Paediatric Neurology Forum

Shakti Agrawal 

EPIC

Mersey and North Wales network 'Epilepsy In Childhood' interest group

Adrian Hughes

NWEIG

North West Children and Young People's Epilepsy Interest Group

Dan Hindley

TEN

Trent Epilepsy Network

Hassan Al-Moasseb

SETPEG

South East Thames Paediatric Epilepsy Group

Elaine Hughes

SWIPE

South West Interest Group Paediatric Epilepsy

Andrew Lux

SWEP

South Wales Epilepsy Forum

Cathy White

NI

N/A N/A

SPEN

Scottish Paediatric Epilepsy Network

Kamath Tallur

BPEG

British Paediatric Epilepsy Group

Ailsa McLellan