The UK Paediatric Epilepsy Programme Board

This Board brings together epilepsy experts from the NHS, academia, charitable organisations and other stakeholder groups to provide a unified voice to ensure paediatric epilepsy sits high on the national agenda. 

Why has this Board been set up?

The Programme Board has been set up to develop an overarching strategy to inform paediatric epilepsy research, training and national quality improvement projects.

RCPCH provides administrative support for this Board which aims to expand the portfolio of epilepsy projects, provide opportunities for collaborative research and support the development and delivery of national and international projects. The Board also provides advice and support to external consultations and quality improvement programmes.

Membership

  • Chair (leading epilepsy specialist with significant academic and clinical expertise)
  • Deputy Chair (paediatrician with significant academic and clinical expertise)
  • RCPCH Senior Management representative
  • British Paediatric Neurology Association (BPNA) representative
  • Organisation of Paediatric Epilepsy Networks (OPEN UK) representative
  • Royal College of Nursing (RCN) representative
  • Mental Health representative (Paediatric Mental Health Association)
  • Education representative (Department of Education)
  • Allied Health Professions representative (British Association of Childhood Disability, BACD)
  • Social Care representative (British Association of Social Workers)
  • Children’s epilepsy charities (Joint Epilepsy Council representative)
  • International League Against Epilepsy (ILAE) representative
  • Children and young people (CYP) and parents’ representatives
  • Coordinator (RCPCH Research and Policy Division)

Meetings

The Board meets three times a year at RCPCH’s London Office.

More information 

For more information about the UK Paediatric Epilepsy Programme Board, please contact:

Email: research@rcpch.ac.uk

Tel: 020 7092 6081