BPSU lay representatives

The British Paediatric Surveillance Unit (BPSU) has two lay members who sit on the BPSU commitee

Jane Sutton

Sutton Headshot CMS.jpgJane’s background is as an NHS professional - as a registered nurse for 25 years and a public health specialist for 13 years. In 1991 she completed her PhD on ‘Accidents to Patients in Hospital’. Her commitment to patient and public involvement (PPI) is demonstrated as a researcher, reviewer and representative. 

These include:

  • Reviewer for the Commission for Health Improvement/Healthcare Commission, with a role to improve patient-focused care
  • Member of Leicestershire NHS research ethics committee
  • Member of ‘National Service Framework for Children & Young People’ team, with a role to consult user-groups and professionals to develop child-focused guidance
  • A parent/lay representative with the Medicines for Children Research Network on their Neonatal Clinical Studies Group

Jane has also involved young people and parents in research (eg Sutton et al. Parents’ views of health surveillance, Archives of Disease in Childhood, 1995; 73: 57-61). She believes that only by the development of PPI can future research match more closely the needs of children and families.      

Madeleine Wang

MW CMS.jpgMadeleine has, for many years, been actively involved in health related community work with children and young people. She has advised NRES, MHRA, and Royal College of Anaesthetists on the development of information materials for children and young people. At present she is working as a patient advocate - helping patients get the information from healthcare providers they want.

She has worked with:

  • the Commission for Human Medicines Paediatric Medicines Expert Advisory Group;
  • was a Member of Picker Institute Europe;
  • England's Clinical Reference Group for Paediatric Intensive Care;
  • Until recently was a member of the steering group member of the National Confidential Enquiry into Patient Outcome and Death
  • the Council of the Association of Paediatric Anaesthetists (APAGBI)

Madeleine has advised NRES, MHRA, the Royal College of Anaesthetists, the Association of Paediatric Anaesthetists, Lab Tests On Line and Adverse Drug Reactions in Children on the development of information materials for children and young people.