Specialty symposia - Association for Paediatric Palliative Medicine, British Paediatric Neurology Association and the British Inherited Metabolic Diseases Group

An afternoon exploring the latest advances in paediatric palliative medicine and neurology with sessions delivered by experts in these field. This is part of the RCPCH Conference Online 2021 programme.
Date: -
Time: -
Registration for Conference is now closed.

British Paediatric Neurology Association

Chair: Dr Sam Amin, British Paediatric Neurology Association

15:30-15:55: Guest lecture: Creating a toolkit for the Genomics, Dr Frances Elmslie

15:55-16:05: Clinical Features of Children Presenting with Prolonged Seizures - A Data Linkage Study from a Scottish Population Cohort. Most likely will be pre-record, Theresa Peltz

16:05-16:15: Families report desire for continuing virtual Epilepsy Clinics: Patient experience during year one of COVID-19 enforced changes to paediatric epilepsy services, Kate Pryde

British Inherited Metabolic Diseases Group

16:15-16:40: Developmental Delay and Inherited metabolic diseases, Dr James Davison  

16:40-16:50: Supplementary Feeding in Children with Mitochondrial Diseases, Dr Victoria Nesbitt

16:50-17:00: Lessons from the newborn screening for Pompe disease: A single-center UK experience based on USA newborn screening program, Nour Elkhateeb

17:00-17:10: Break

Association of Paediatric Palliative Medicine

1710-1735: Guest lecture: Managing Paediatric Mitochondrial Disease, Dr Victoria Nesbitt 

1735-1745: Development of a partnership to improve palliative care services for children in The Gambia, Deborah Shanks

1745-1755: Discussing Organ and Tissue Donation by Children with Cancer; Is There a Training Need? Anna Chadwick

1755-1800: Closing remarks