Specialty symposium - Association for Paediatric Palliative Medicine and British Paediatric Neurology Association

An afternoon exploring the latest advances in paediatric palliative medicine and neurology with sessions delivered by experts in these fields. This is part of the RCPCH Conference Online 2021 programme.
Date: -
Time: -
Registration for Conference is now closed.

British Paediatric Neurology Association

Chair: Dr Sam Amin, British Paediatric Neurology Association

15:30-15:55

Guest lecture: title TBC, Dr Frances Elmslie

15:55-16:05

Clinical Features of Children Presenting with Prolonged Seizures - A Data Linkage Study from a Scottish Population Cohort. Most likely will be pre-record, Theresa Peltz

16:05-16:15

Families report desire for continuing virtual Epilepsy Clinics: Patient experience during year one of COVID-19 enforced changes to paediatric epilepsy services, Kate Pryde

16:15-16:40

Developmental Delay and Inherited metabolic diseases, Dr James Davison  

16:40-16:50

Supplementary Feeding in Children with Mitochondrial Diseases, Dr Victoria Nesbitt

16:50-17:00

Lessons from the newborn screening for Pompe disease: A single-center UK experience based on USA newborn screening program, Nour Elkhateeb

17:00-17:10

Break

Association of Paediatric Palliative Medicine

Chair – Dr Emily Harrop, Association of Paediatric Palliative Medicine

17:10-17:35

Guest lecture: Managing Paediatric Mitochondrial Disease, Dr Victoria Nesbitt

17:35-17:45

Development of a partnership to improve palliative care services for children in The Gambia, Deborah Shanks

17:45-17:55

Chadwick, Anna Discussing Organ and Tissue Donation by Children with Cancer; Is There a Training Need?

17:55-18:00 Closing remarks