News

On 20 June 2023, the Epilepsy12 Youth Advocates were announced as joint winners of the Patient and Public Involvement Hero Award by the Healthcare Quality Improvement Partnership (HQIP). The award is one of five Clinical Audit Heroes Awards that are announced during the 2023 Clinical Audit Awareness...

On 17th November 2022, the Epilepsy 12 Youth Advocates were announced as the winners for the Richard Driscoll Memorial Award for outstanding patient involvement in clinical audit at the annual Healthcare Quality Improvement Partnership (HQIP) AGM.

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the RCPCH Engagement Committee has pulled together views and thoughts in this letter.

We met with children and young people at community groups, schools and hospitals across the UK. They told us, "they are lifesavers" and that the NHS "helps people when they need it most". They also advised that "NHS staff have someone to look after them too". Take a look and share our 90-second vide...