12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
2 November 2018
With our members, we lead the way in transforming child health. And, a big part of this is ensuring children and young people are actively involved in the decisions affecting them. We offer you resources and activities to help you get CYP voice in your services.