15 October 2019
At the BPSU's rare disease tea party in July, the Minister for rare disease at the Department for Health and Social Care, Baroness Blackwood, announced a ‘national conversation’ on rare disease.
8 August 2019
Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...
6 August 2019
Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.
31 July 2019
This British Paediatrics Surveillance Unit study will assess the current disease burden of herpes simplex virus (HSV), and help to inform future practice on detection, prevention and management of this dangerous disease.
24 June 2019
We believe that child health research should be embedded as part of every paediatrician’s training, and throughout their careers. If you’re a consultant, SAS doctor or CCT holder, we invite you to complete our 2019 Participation in Child Health Research survey and tell us how we can support you in c...
RCPCH statement following the review of maternity services at the former Cwm Taf University Health Board
30 April 2019
A report into maternity services at the former Cwm Taf University Health Board has been published today. RCPCH comments on the findings.
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
20 August 2018
Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.