15 October 2019
At the BPSU's rare disease tea party in July, the Minister for rare disease at the Department for Health and Social Care, Baroness Blackwood, announced a ‘national conversation’ on rare disease.
6 August 2019
Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.
31 July 2019
This British Paediatrics Surveillance Unit study will assess the current disease burden of herpes simplex virus (HSV), and help to inform future practice on detection, prevention and management of this dangerous disease.
1 February 2019
We have worked with NHS England on a programme to ensure children and young people with a learning disability, autism or both are able to access appropriate medication, and are not prescribed inappropriate psychotropic medication. Find out more and read our full pledge.
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
8 November 2018
We have started work on our two-year project of enquiry, which will set a vision for the future of paediatrics in the UK.
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
20 August 2018
Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.
26 September 2017
Four young people, Bethany, Robyn, Charlie and Jay, took over this edition. Take a flip through and see what they have to say on mental health, transgender, helping to develop the new curriculum and lots more.