News

RCPCH is delighted to announce two new appointments to their Board of Trustees, Taona Makunganya (pictured left) and Dr Sunil Bhopal (pictured right).

The summary brings together the Children and Young People’s (CYP) key recommendations from the recent RCPCH report, Preserving the world for future generations, and aims to provide decision makers and paediatricians with a digestible summary of our evidence.

The Association for Young People’s Health - funded by the National Paediatric Diabetes Audit at RCPCH - reports on its project to understand the experiences of children, young people and families from groups that may be more likely to face marginalisation, on managing their Type 1 diabetes.

The engagement project, by the Association for Young People's Health, shares understanding of experiences from young people with epilepsy who are based in communities that experience marginalisation. This news article shares background information on the scoping and set up of the engagement project ...

On 20 June 2023, the Epilepsy12 Youth Advocates were announced as joint winners of the Patient and Public Involvement Hero Award by the Healthcare Quality Improvement Partnership (HQIP). The award is one of five Clinical Audit Heroes Awards that are announced during the 2023 Clinical Audit Awareness...

On 17th November 2022, the Epilepsy 12 Youth Advocates were announced as the winners for the Richard Driscoll Memorial Award for outstanding patient involvement in clinical audit at the annual Healthcare Quality Improvement Partnership (HQIP) AGM.

This team has demonstrated a commitment to working in such a way that all their research is informed by children and young people, their families and those who support them. They really lead the way in supporting innovative methods of recruitment and delivering studies.

In celebration of Volunteers' Week, these awards recognise the hard work and dedication of children, young people and families who volunteer with RCPCH &Us. This year our judging panel had a tough job on their hands: over 280 people had volunteered more than 890 hours through RCPCH &Us. Find out who...

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the RCPCH Engagement Committee has pulled together views and thoughts in this letter.