8 August 2019
Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...
6 August 2019
Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.
5 August 2019
The British Paediatric Surveillance Unit and RCPCH once again invite applications for this bursary from early career paediatricans wishing to undertake an epidemiological study of a rare disease or condition. Winners are awarded a free slot on the BPSU 'Orange eCard' reporting scheme and a stipend t...
31 July 2019
This British Paediatrics Surveillance Unit study will assess the current disease burden of herpes simplex virus (HSV), and help to inform future practice on detection, prevention and management of this dangerous disease.
29 March 2019
Experts from 13 national bodies, including seven Royal Colleges, have joined forces to launch new practical guidance to support doctors and other health professionals around valproate use in women and girls in their reproductive years.
25 March 2019
Wales has taken the next step towards protecting children’s’ rights by introducing legislation to end the physical punishment of children. RCPCH responds.
1 February 2019
We have worked with NHS England on a programme to ensure children and young people with a learning disability, autism or both are able to access appropriate medication, and are not prescribed inappropriate psychotropic medication. Find out more and read our full pledge.
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
13 November 2018
How can storytelling skills help in a clinical setting? Serena Haywood, a neurodevelopmental consultant in London, talks about how her two jobs complement each other, and the importance of resilience.
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.