13 July 2020
The British Paediatric Surveillance Unit and RCPCH once again invite applications for this bursary from early career paediatricians wishing to undertake an epidemiological study of a rare disease or condition. Winners are awarded a free slot on the BPSU 'Orange eCard' reporting scheme and a stipend ...
19 May 2020
The Royal College of Paediatrics and Child Health (RCPCH) and Newlife the Charity for Disabled Children are pleased to announce their first joint clinical research fellowship award in childhood disability has been awarded to Dr Asma Soltani at the University of Cambridge. Dr Soltani will research Re...
Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month
5 March 2020
This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...
5 February 2020
Dr Mike Linney, Registrar and Chair of the Ethics Committee for RCPCH, welcomes recent guidance from NICE, but notes the urgent need for high quality, independent research on this medicine to provide the best possible care for children with complex epilepsy.
27 January 2020
This British Paediatric Surveillance Unit study will aim to gain a better understanding of these non-vaccine strains of pneumococcal bacteria causing meningitis - enabling more accurate information to patients and their families on prognosis and informing public health vaccine policy.
8 August 2019
Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...
6 August 2019
Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.
31 July 2019
This British Paediatrics Surveillance Unit study will assess the current disease burden of herpes simplex virus (HSV), and help to inform future practice on detection, prevention and management of this dangerous disease.
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.