15 October 2019
At the BPSU's rare disease tea party in July, the Minister for rare disease at the Department for Health and Social Care, Baroness Blackwood, announced a ‘national conversation’ on rare disease.
8 August 2019
Since 2014 the British Paediatric Surveillance Unit has held this annual event - young people living with rare disease and health professionals working in the field share their experiences. Our interns went along to find out more...
6 August 2019
Surveillance will continue through the National Surveillance of HIV in Pregnancy and Childhood (NSHPC) team at University College London Great Ormond Street Institute of Child Health.
31 July 2019
This British Paediatrics Surveillance Unit study will assess the current disease burden of herpes simplex virus (HSV), and help to inform future practice on detection, prevention and management of this dangerous disease.
16 January 2019
This BPSU study hopes to improve our knowledge of the incidence, clinical presentation and management of FPIES as well as improve awareness of the condition among paediatricians.
12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
20 August 2018
Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.
14 August 2018
Dr Anne Gordon, Consultant Occupational Therapist in Paediatric Neuroscience at the Evelina London Children’s Hospital and Trustee of the Stroke Association, has written a guest blog about the needs of children and their families following brain injury, providing an insight into what we can do to be...
2 July 2018
In celebration of the 70th Anniversary of the NHS, Dr Winifred Baddoo, Chair of the British Association of Paediatricians in Audiology, has written a blog looking back over the history of confirmation of deafness in children, and the ways in which habilitation for these children, through NHS service...