Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
Determining pregnancy status in young female patients under 16 years of age is an area that clinicians may find difficult. This practical guide sets out the issues, risks and approaches that NHS organisations may consider when developing their policies in this area.