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BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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Clinical guideline directory

The Guideline Directory contains a full list of paediatric guidelines published by the National Institute for Health and Care Excellence (NICE) and the Scottish Intercollegiate Guidelines Network (SIGN), as well as those from other Royal Colleges or paediatric specialty groups which meet the standar...
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Developing a clinical guideline - our hub

Welcome! This page is for paediatric specialty groups and others who intend to produce a clinical guideline in child health. Clinical guidelines are sets of recommendations based on systematic research methods. Producing these requires advanced research skills and project management. Below is...
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Diagnosis of death using neurological criteria - guidance regarding not performing the Apnoea Test in the context of evidence of high cervical spinal cord injury

In 2022 a diagnosis of death using neurological criteria was made in a child which had to be reversed later when the patient had return of spontaneous albeit abnormal breathing. An expert group reviewed this case in detail. This guidance summarises the essential immediate implications arising from t...