Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
On 10 September 2020, we hosted our third annual Epilepsy12 & Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference 2020: 'Working together to improve epilepsies’, as a live webinar. Access resources and presentations from the event on this page.
This meeting place on 18 April 2016 at the Cavendish Conference Centre in London. Over 120 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives and commissioners.
This meeting took place on 24 April 2017 at the Studio in Birmingham. Over 100 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives.