Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
RCPCH &Us is working with young people to reflect on their experiences of COVID-19 and the lockdown. This will help inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.
This meeting place on 18 April 2016 at the Cavendish Conference Centre in London. Over 120 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives and commissioners.
This meeting took place on 24 April 2017 at the Studio in Birmingham. Over 100 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives.
On 17 January 2020, the National Paediatric Diabetes Audit (NPDA) held their National Conference at the Holiday Inn in London. Clinicians from all professional groups working in diabetes and other invited stakeholders came together to learn about how NPDA data has been used to improve services and t...