Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
On 17 June 2019, more than 150 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the second Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children and y...
This page provides guidance and resources for delivering an effective transition from children's to adults' health services. We highlight five key determinants that ensure young people are provided with high quality care throughout the transition process.
A paediatric gastroenterologist supports children with disorders that affect the gastrointestinal tract (stomach and intestines). A paediatric hepatologist works with children with liver diseases. Find out more about this sub-specialty and its curriculum.
A paediatric neurologist is a doctor with (or trainee doctor working towards acquiring) expertise in diagnosing and managing the vast range of neurological disorders affecting children and young people. Find out more about this sub-specialty and its curriculum.