Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
This page provides guidance and resources for delivering an effective transition from children's to adults' health services. We highlight five key determinants that ensure young people are provided with high quality care throughout the transition process.
A paediatric gastroenterologist supports children with disorders that affect the gastrointestinal tract (stomach and intestines). A paediatric hepatologist works with children with liver diseases. Find out more about this sub-specialty and its curriculum.