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The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

Two years after its launch, we carried out an evaluation to understand how healthcare professionals, children and young people and their families use the Epilepsy Passport. This tells us which aspects of the Passport have been successful and which need improvement.

We asked healthcare professionals, researchers and patient public involvement leads how they use the Charter in their work settings. Here we bring together case studies on how the Charter has been used to raise awareness of the importance of child health research.

The NHS 111 project aims to evaluate urgent and emergency care services and provide system-wide learning for commissioners and providers to deliver better care for children and young people.