Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
RCPCH &Us is working with young people to reflect on their experiences of COVID-19 and the lockdown. This will help inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.