The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
This page provides guidance and resources for delivering an effective transition from children's to adults' health services. We highlight five key determinants that ensure young people are provided with high quality care throughout the transition process.
The National Paediatric Diabetes Audit (NPDA) reports highlight the main findings on the quality of care for children and young people with diabetes mellitus in England and Wales.
Our annual, national reports, 'Care processes and outcomes' highlight the main findings on the quality of care for children and young people with diabetes mellitus in England and Wales. On this page you can download our latest and previous reports, and find links to our reports especially for parent...