Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
This event was a great opportunity to network and learn more about how data is being used to monitor and improve neonatal care in the National Neonatal Audit Programme (NNAP). Take a look at the videos from the day's presentations.