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Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...

Child and adolescent mortality

Neurology

Epilepsy

Research

Document

Epilepsy12 - national organisational audit and clinical audit - 2019

Epilepsy is the commonest significant neurological disorder affecting children and young people. Launched in September 2020, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy servic...

Community child health

General paediatrics

Neurology

Epilepsy

Resource

Epilepsy12 - national organisational audit and clinical audit - 2021

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2021, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Children and young people's voice

Public health

Wellbeing for children and young people

Quality improvement

Resource

Epilepsy12 - national organisational audit and clinical audit - 2022

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2022, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Resource

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2023, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Resource

Epilepsy12 - national reports from 2009-2014

Rounds one and two of Epilepsy12 ran between 2009 and 2014 with paediatric services across the whole of the UK taking part. You can download reports for both rounds, including the full national reports and versions adapted for parents, carers, children and young people.

Resource

Epilepsy12 National Organisational Audit Report 2018

This is the first formal output of Round 3 of the Epilepsy12 audit. It describes the organisation of paediatric epilepsy services for children and young people in England and Wales, as at April 2018. It shows improvements in some areas, including numbers of epilepsy nurse specialists and paediatrici...

Resource

Epilepsy12 &Us - voices from the RCPCH &Us network

Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. We worked with our Epilepsy12 Youth Advocates to produce a ...

Children and young people's voice

RCPCH &Us

Patient experience

Document

Paediatric Gastroenterology, Hepatology and Nutrition UK National Census 2021 - report

This report, published jointly by the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) and RCPCH, highlights the main findings and recommendations identified through an audit of the provision of paediatric gastroenterology, hepatology and nutrition services for infa...

Document

Patient and parent guide to the Epilepsy12 audit

Epilepsy12 is a national audit aiming to improve the quality of care for children and young people with epilepsies in the UK. The patient & parent guides and young person & parent leaflet describe key messages and information from the audit and are useful resources for patients and parents. The Epil...

Epilepsy

All resources

Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)

Epilepsy12 - national organisational audit and clinical audit - 2019

Epilepsy12 - national organisational audit and clinical audit - 2021

Epilepsy12 - national organisational audit and clinical audit - 2022

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy12 - national reports from 2009-2014

Epilepsy12 National Organisational Audit Report 2018

Epilepsy12 &Us - voices from the RCPCH &Us network

Paediatric Gastroenterology, Hepatology and Nutrition UK National Census 2021 - report

Patient and parent guide to the Epilepsy12 audit

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