Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
It is essential that paediatrics is a 24 hours a day, seven days a week specialty, with the most experienced doctors present at the busiest times. Our report sets out ten standards for high quality, safe and sustainable acute general paediatric services.