Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
It is essential that paediatrics is a 24 hours a day, seven days a week specialty, with the most experienced doctors present at the busiest times. Our report sets out ten standards for high quality, safe and sustainable acute general paediatric services.
A vision of how paediatric care can be delivered to provide a high-quality service that meets the needs of infants, children and young people with ongoing health needs.
This outlines 69 recommendations to improve the management of high dependency care. It places the child and their complete critical care pathway at the focus of service delivery. The document is intended for staff, management and commissioners seeking to deliver safe and high quality care for critic...
These standards aim to reduce variation in care, ensuring equitable services, and to improve the health outcomes and quality of life for all infants, children and young people with gastroenterology, liver or intestinal disorders in the UK. You can read our summary and download the full standards bel...