For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
We are now accepting data for the 2020-21 audit year. Download the current dataset, templates for submitting data via CSV and questionnaire and our user guide.
This special report brings together views of children, young people and families looking at key themes from our flagship report. These include poverty, mental health, communication, PSHE (personal, social and health education), LGBT (lesbian, gay, bisexual, transgender) and children’s rights.
This report, published in January 2020, focuses on lead roles concerning safeguarding, the child death service, looked after children (LAC) and special educational needs and disability (SEND).