Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
On 10 September 2020, we hosted our third annual Epilepsy12 & Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference 2020: 'Working together to improve epilepsies’, as a live webinar. Access resources and presentations from the event on this page.
On 17 January 2020, the National Paediatric Diabetes Audit (NPDA) held their National Conference at the Holiday Inn in London. Clinicians from all professional groups working in diabetes and other invited stakeholders came together to learn about how NPDA data has been used to improve services and t...