Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
RCPCH &Us is working with young people to reflect on their experiences of COVID-19 and the lockdown. This will help inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.
The Charter aims to support children, young people, families and health professionals to talk about child health research and guide discussions to ensure everyone is clear on what is happening, when and why child health research is important.