Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. We worked with our Epilepsy12 Youth Advocates to produce a ...
We commit to auditing our standards so we can build a comprehensive picture of paediatric provision across the four nations. This audit report covers Facing the Future: Standards for acute general paediatric services and Facing the Future: Together for child health.
This special report brings together views of children, young people and families looking at key themes from our flagship report. These include poverty, mental health, communication, PSHE (personal, social and health education), LGBT (lesbian, gay, bisexual, transgender) and children’s rights.