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BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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Facing the Future Superhero

As a child or young person, you don't need superpowers! You have the right to be involved in decisions about your care and to be treated by the right people, at the right time, in the right place. It's all in our Facing the Future standards. Why don't you play our game, tell others about your rights...