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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
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BPSU study - Surveillance of female genital mutilation (FGM) in children and young people under the age of 16 in the UK and ROI
Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...
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Changes to the teaching of relationships and sex education and PSHE - consultation response
In 2018 we responded to the Department for Education's proposed changes to the teaching of RSE (relationships and sex education) and PSHE (personal, social, health and economic), recommending a holistic, age appropriate approach.
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Child health - A manifesto from RCPCH
The 2019 UK General Election is an important opportunity to advocate for children, young people, and the paediatricians and child health workers who care for them. This document makes the case for the next government to invest in our workforce, put child health at the heart of policy making and impl...
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Clinical leads development programme
A portfolio of events and support for current, new and aspiring paediatric clinical leads and clinical directors of children’s services. Participants may join the full programme, or any individual event in any order.
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Communicating the aims and outputs of the NNAP effectively to parents and families - a case study for NNAP
This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...