Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
We are now accepting data for the 2019-20 audit year. Download the current dataset, templates for submitting data via CSV and questionnaire and our user guide.
On 18 January 2019, the National Paediatric Diabetes Audit (NPDA) held their National Conference at The Met Hotel in Leeds. Clinicians from all professional groups working in diabetes and other invited stakeholders came together to learn about how NPDA data has been used in research and to inform be...
This page explains how to submit data for our census, using our online data collection system, which is now open. Our Workforce team is sending login details to Clinical leads and directors at each NHS Trust / Health Board in the UK, as well as colleagues they assign.