Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
On 17 June 2019, more than 150 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the second Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children and y...
This meeting place on 18 April 2016 at the Cavendish Conference Centre in London. Over 120 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives and commissioners.
This meeting took place on 24 April 2017 at the Studio in Birmingham. Over 100 people attended the event, including parents, multi-disciplinary neonatal unit staff members, neonatal network representatives.
This event was a great opportunity to network and learn more about how data is being used to monitor and improve neonatal care in the National Neonatal Audit Programme (NNAP). Take a look at the videos from the day's presentations.