Growing up with diabetes: children and young people with diabetes in England - research report (2009)

Caring for children and young people with diabetes involves a complex process of care provision. Accurate, up-to-date knowledge is crucial to the planning and delivery of best quality health care. This report sets out the findings of a working group established to survey the number of children and young people in England with diabetes.


The project was commissioned by the Department of Health and funded by NHS Diabetes.

It was conducted by RCPCH, in collaboration with with NHS Diabetes, the British Society for Paediatric Endocrinology and Diabetes (BSPED), the Association of Children’s Diabetes Clinicians (ACDC), Diabetes UK, the Royal College of Nursing, the National Diabetes Information Service (NDIS) and the Yorkshire & Humber Public Health Observatory.

Aims of the project

  • Establish the total number of infants, children and young people under the age of 18 in England with diabetes of any type on the 1st January 2009
  • Establish the relative burdens of Type 1 and non-Type 1 diabetes and the age breakdown of children and young people with diabetes
  • Inform the development of the national diabetes audit by exploring potential barriers to participation
  • Inform the potential establishment of a national register of childhood diabetes