infoKID evaluation (2017)

infoKID launched in March 2014 to provide information on kidney conditions, tests and diagnoses, treatments and supporting information. This evaluation, published in February 2017, aimed to understand how parents, carers and patients, and healthcare professionals use the website.
infoKID: Information for parents and carers about children's kidney conditions

Google Analytics data were accessed and surveys developed for parents, carers and patients, and healthcare professionals to gather feedback on their experiences and views of the infoKID website. The full evaluation report and main findings in poster format are available to download below.

Excellent, reassuring resource. Definitely helped me as a parent sift through information. I felt less overwhelmed/isolated after knowing about this site. Thank you!

Parent using infoKID

Key findings

  • Since infoKID’s launch there has been a total of 178,469 visits to the infoKID website; over 100,000 of these visits have been via a mobile device.
  • Visits to the site have grown month-on-month, with an average of 8,500 visits per month.
  • Parents, carers and patients who completed the survey find the website easy to navigate (90%), that the information is clearly organised (80%) and easy to understand (84%).
  • 90% of healthcare professionals who completed the survey are signposting families to the infoKID website.
  • 95% of healthcare professionals who completed the survey believe infoKID is a useful resource for parents and carers of children and young people under their care.
  • Parents, carers and patients would like to see a social forum and parent/patient stories added to the website so they are able to talk to and share experiences with other parents, carers and patients.

Arguably one of the most useful developments in the last decade helping carers in the management of their children with kidney disease.

Healthcare professional using infoKID

Development for the future

  • Develop additional information for the website and link to resources available elsewhere
  • Explore the development of a mobile friendly platform or app for the website
  • Increase promotion of infoKID by supporting healthcare professionals to signpost to infoKID