For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
The BPSU hosts an annual Rare Disease Day tea party - an informal networking event that brings together patients and carers, healthcare professionals, researchers and policy makers.
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.