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BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
Document

BPSU - Rare Disease Day activities

The BPSU hosts an annual Rare Disease Day tea party - an informal networking event that brings together patients and carers, healthcare professionals, researchers and policy makers.
Resource

Communicating the aims and outputs of the NNAP effectively to parents and families - a case study for NNAP

This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...
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Diagnosis of death by neurological criteria (DNC) in infants less than two months old - clinical guideline

This NICE accredited evidence-based clinical guideline provides recommendations on the diagnosis of death by neurological criteria (DNC) in infants from 37 weeks corrected gestation (post menstrual) to two months of age (post term). It is for all UK paediatric and neonatal health care practitioners ...