Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
The case for investing in integrated child health services for the acutely unwell child and long term conditions
This information bundle presents a model for how an integrated children's service (ICS) within a primary care network could improve child health outcomes. This information was presented to NHS England to inform the development of their long term plan.