All resources

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

Child Protection Evidence is a resource available for clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion on the legal system. This systematic review evaluates the literature on abusive and non-abusive visceral inj...

In 2019 we responded to NHS England’s consultation on cancer services for children, teenagers and young adults. While we welcomed the direction of travel we identified a number of areas for improvement.

We work with organisations in England and Wales to improve outcomes for children and young people with diabetes. In our Quality Improvement and Peer Review activities, we seek to identify examples of good practice from participating teams that we can share across the paediatric diabetes community to...

Guidance and resources for clinicians involved in the delivery of paediatric diabetes care. The Diabetes Quality Programme team will regularly update this page - please keep checking for the latest resources.

This report provides data and insights from the first Self-Assessment and External Verification components of the National Children and Young People's Diabetes Quality Programme. With this baseline data, we will be able to make comparisons year on year, and reflect on what is working well and what c...